Per the LLMD at my first appointment, I was requested to get an Igenex kit and have my blood sent to them for confirmation. I already had a kit previously sent to me, so today I had my PCP draw, label and spin it. I then drove 30 minutes to the nearest FedEx office to…
After following advice from ILADS, I just had my first LLMD appointment. My LabCorp paperwork was reviewed and he was convinced I had Lyme just based on that. He recommended the normal procedure of getting Igenex testing, so I will be having my local PCP draw and spin the blood. After the results come back,…
Another sweet round of Methyl-Prednisolone, but this time for 3 days and at my home. My neurologist wanted me to take these steroids in preparation of the 9 new lesions on my last brain MRI. I knew I would get all the side effects from them: heartburn, insomnia, metallic taste in mouth, and feel worse.…
At this neurologist appointment, I was basically scolded at for not being on a DMD MS drug. The neurologist emphasized the importance of early treatment, but I am still on the edge of use with those types of drugs. I think to myself… if others were misdiagnosed with MS and it really is Lyme and…
Another appointment, this time for food allergy testing and yet another Lyme test. Apparently the only food I am allergic to is SHRIMP! never once had a problem eating shrimp. Below are the results of my 3rd Lyme test within 12 months. Lyme AB IGG: Lyme AB IGM:
I made an appointment today to ask for Lyme treatment. The doctor surprisingly agreed and talked about how benign the antibiotics are. He gave me a 3 week prescription of Doxycycline. I asked why only 3 weeks and why Doxy and not Minocycline? He said Doxy would do the job and Mino isn’t used for…
First thing she asks is why she didn’t see Rebif on my list of medications. I explained to her that I wanted LDN. She went on and on why I can’t have LDN because it is not a FDA approved MS drug. She did however say they have one patient on it and they would…
I had the infamous Spinal Tap this week and suffered the headache that most people get. There was no pain associated with the needle being pushed into my spine though, so I have to credit the doctor for that. The results came back as expected, but my Blood-Brain-Barrier is still intact, so that’s good news.
More lesions here!!! The neurologist was not surprised. She was more surprised that I did not have a spine MRI before being passed on to her. I happen to be graced by a T4 disc herniation as well, which I may have received when stretching back in December. The lady who called me about my…
I got to enjoy my very first dose of IV steroids this morning. Methyl-Prednisolone at 1g over a 2 hour period. With the first few drips down the cable, a metallic taste filled my mouth. One of the great side effects. I cannot wait to experience the other side effects like massive heartburn, insomnia, and…
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