Another sweet round of Methyl-Prednisolone, but this time for 3 days and at my home. My neurologist wanted me to take these steroids in preparation of the 9 new lesions on my last brain MRI. I knew I would get all the side effects from them: heartburn, insomnia, metallic taste in mouth, and feel worse.…
At this neurologist appointment, I was basically scolded at for not being on a DMD MS drug. The neurologist emphasized the importance of early treatment, but I am still on the edge of use with those types of drugs. I think to myself… if others were misdiagnosed with MS and it really is Lyme and…
Another appointment, this time for food allergy testing and yet another Lyme test. Apparently the only food I am allergic to is SHRIMP! never once had a problem eating shrimp. Below are the results of my 3rd Lyme test within 12 months. Lyme AB IGG: Lyme AB IGM:
At this point in time, there is one thing I am positive about… I was tested for Lyme and 2 bands came back. If there was small to no chance I had Lyme, nothing would have showed up, but something did. I know I have active lesions and active symptoms that all point to a…
After searching for 3 months, I’ve finally found a doctor to prescribe Low Dose Naltrexone (LDN). Tonight I will start on 1.5mg for 3 weeks and then step it up 3mg for 3 weeks and eventually end up taking 4.5mg for 3 weeks. This is what I was told to do to see what mg…
I made an appointment today to ask for Lyme treatment. The doctor surprisingly agreed and talked about how benign the antibiotics are. He gave me a 3 week prescription of Doxycycline. I asked why only 3 weeks and why Doxy and not Minocycline? He said Doxy would do the job and Mino isn’t used for…
First thing she asks is why she didn’t see Rebif on my list of medications. I explained to her that I wanted LDN. She went on and on why I can’t have LDN because it is not a FDA approved MS drug. She did however say they have one patient on it and they would…
Today I have noticed some changes in my fingernails and beds. I now have some horizontal ridging and more redness then I have noticed in the past. As far back as I can remember my nails were always more on the white/flesh colored side. I was told I was Vitamin D deficient, so up until…
Deep muscle pain has begun today. It is mainly in the biceps and triceps in both arms, but more so in the left arm. I did nothing exercise related to attribute to arm pain. If anything, the steroid treatment brought about this pain.
I had the infamous Spinal Tap this week and suffered the headache that most people get. There was no pain associated with the needle being pushed into my spine though, so I have to credit the doctor for that. The results came back as expected, but my Blood-Brain-Barrier is still intact, so that’s good news.
