Steroids – Round 3

Another sweet round of Methyl-Prednisolone, but this time for 3 days and at my home. My neurologist wanted me to take these steroids in preparation of the 9 new lesions on my last brain MRI. I knew I would get all the side effects from them: heartburn, insomnia, metallic taste in mouth, and feel worse.…

Still No MS Drugs

At this neurologist appointment, I was basically scolded at for not being on a DMD MS drug. The neurologist emphasized the importance of early treatment, but I am still on the edge of use with those types of drugs. I think to myself… if others were misdiagnosed with MS and it really is Lyme and…

Food Allergy & Lyme Testing

Another appointment, this time for food allergy testing and yet another Lyme test. Apparently the only food I am allergic to is SHRIMP! never once had a problem eating shrimp. Below are the results of my 3rd Lyme test within 12 months. Lyme AB IGG: Lyme AB IGM:

Thus Far

At this point in time, there is one thing I am positive about… I was tested for Lyme and 2 bands came back. If there was small to no chance I had Lyme, nothing would have showed up, but something did. I know I have active lesions and active symptoms that all point to a…

LDN – 1.5mg

After searching for 3 months, I’ve finally found a doctor to prescribe Low Dose Naltrexone (LDN). Tonight I will start on 1.5mg for 3 weeks and then step it up 3mg for 3 weeks and eventually end up taking 4.5mg for 3 weeks. This is what I was told to do to see what mg…

Request Lyme Treatment

I made an appointment today to ask for Lyme treatment. The doctor surprisingly agreed and talked about how benign the antibiotics are. He gave me a 3 week prescription of Doxycycline. I asked why only 3 weeks and why Doxy and not Minocycline? He said Doxy would do the job and Mino isn’t used for…

A Neurologist Check Up

First thing she asks is why she didn’t see Rebif on my list of medications. I explained to her that I wanted LDN. She went on and on why I can’t have LDN because it is not a FDA approved MS drug. She did however say they have one patient on it and they would…

Fingernail Changes

Today I have noticed some changes in my fingernails and beds. I now have some horizontal ridging and more redness then I have noticed in the past. As far back as I can remember my nails were always more on the white/flesh colored side. I was told I was Vitamin D deficient, so up until…

Deep Muscle Pain

Deep muscle pain has begun today. It is mainly in the biceps and triceps in both arms, but more so in the left arm. I did nothing exercise related to attribute to arm pain. If anything, the steroid treatment brought about this pain.

The Spinal Tap

I had the infamous Spinal Tap this week and suffered the headache that most people get. There was no pain associated with the needle being pushed into my spine though, so I have to credit the doctor for that. The results came back as expected, but my Blood-Brain-Barrier is still intact, so that’s good news.